In his December 13, 2016 Forbes blog post Michael Bernick, former California labor department director gives a good overview of the employment situation for those on the autism spectrum. At Autistry we have been working on employment for our students for many years and know how difficult it is to find good solutions for them. In our experience with the different types of employment situations we conclude that Social Enterprises provide the most robust solution for the largest number of autistic individuals.
Bernick identifies three main types of employment opportunities:
1. “Autism at Work” and other targeted hiring and retention efforts by large employers.
Companies such as Microsoft and Salesforce have initiatives to provide employment opportunities in support staff as well as staff for their primary business.
2. Autism-focused businesses.
Also known as Social Enterprises (and in the past “sheltered employment”) these would be businesses formed with the intention of providing employment opportunities.
3. Self-employment and internet-based creative collectives.
These are programs to enable individuals to start their own businesses as well as systems that support individuals marketing their own creations as a way to earn a living.
Bernick makes no mention of employment at small local businesses and we think he was right to omit them. Small businesses are a large share of the employment picture and their small size can be good for autistic employees. However, we have found it nearly impossible to chisel out a spot in any local business that is both good for the individual and good (profitable) for the local business. The reality is most individuals who need services also need significant support to work. Small businesses can’t afford the required support and there are no programs that provide that kind of support over the multi-year timeframe we find is required.
Yes, we know of some people who have had jobs with local businesses, sometimes for many years. On examination these are all very special cases. There is usually continuous family support and/or the personal involvement of a key business owner. When it works, these situations are utopian. But the suffer from being exceedingly fragile. We have had many students come to us after having been ejected from an employment situation that might have been stable for years but could not weather very typical changes: Owners and family members providing support age and die. Businesses change, change owners, or fail. For every one student in a special job at a local business, I have twenty or thirty we cannot place. Without special financial incentives and robust support, we do not see local businesses being able to scale employment in numbers large enough to solve the employment challenge.
Large employers like Microsoft can and do provide programs supporting employment for autistics. Within this are generally two tiers of employment. On one tier are support jobs like food services, janitorial, office supply and office management and these can be accessible to the most impaired individuals. On the next tier are jobs related to the core business function of the company. These higher level jobs are accessible only to the most talented, least impaired individuals. At Microsoft these would be jobs as programmers with additional support. Our main concern is that these initiatives can survive only as long as the business can sustain them and might be vulnerable to changes in business climate. Another issue is that for the support jobs any migration to higher level jobs within the company can be difficult or impossible.
The idea that many or most autistic individuals can run their own business and make a living is a beautiful idea that does have any basis in reality. Just because autistics can be bossy, it does not follow that they should be bosses. Just because many might prefer to work alone, it does not follow they should be sole proprietors. Most NTs (NeuroTypicals) are not capable of running their own businesses. Most NTs spend their entire lives as employees of businesses they do not own or run. Even without the added complication of being autistic the ability to be a successful entrepreneur is rare. Individuals capable of running their own business should certainly be supported but like employment at small local businesses, we do not feel this solution scales to the number of individuals who need employment.
Paraphrasing Churchill: Creating small businesses specifically to provide employment is not a great solution, except when compared to all the other ways that have been tried.
An example of a social enterprise that Autistry Studios could create would be a light manufacturing business making products such as small furniture items out of wood, model kits produced on machines like our laser cutters and 3D printers, and textile products sewn by student/employees. Because our goal is interesting products that provide good employment we can and will migrate through many different product ideas and types. Depending on a student/employee’s ability they could hold any one of many jobs within this manufacturing organization: product design, marketing, sales, production, customer service, … For the most capable employees these jobs can be short term jobs providing training and experience towards independent employment. For the more impaired they can spend as much time as they need growing in skills and experience until they can leave to work independently. For the most impaired this would be a stimulating and productive way for them to spend their time.
We feel Social Enterprises (SEs) are the best and most flexible solution to the employment problem for autistic youth. They can be scaled to employ large numbers of individuals and there is every indication that the number of autistics entering adulthood is growing. Social Enterprises offer support across the spectrum and create meaningful employment for all levels of ability.
We are parents of a child with Autism Spectrum Disorder (ASD) and professionals who chose to immerse ourselves in working with this population. We will often use “autistic” to mean either “symptoms of the diagnosis of autism” or “a person with the diagnosis of autism.” Similarly we will use ASD to mean either “Autism Spectrum Disorder” or “a diagnosis of Autism Spectrum Disorder” or “autistic.” One of the authors (Daniel) has Asperger’s Syndrome and we will often use “Aspergers” or “aspie” to refer to individuals with Asperger’s Syndrome. We often refer to our “clients” as “students” and use the terms interchangeably.